Boys' rare disease bonds Cottage Grove, St. Paul Park families
Jennifer Fair said she tells her 10-year-old son that she loves him and that he is “my perfect boy.”
She sees Alex, not the disease that will eventually take his life.
Most nights, Alex has trouble staying asleep. When he’s having a bad night, Erik Fair does what most fathers will never have to do. He sleeps next to his son’s bed and when Alex tries to get up, Eric puts Alex’s leg back into the bed and goes back to sleep.