Sections

Weather Forecast

Close
Advertisement
Alex Fair (left) and Jack Kell, pictured playing on the mini trampoline in the Fair family room, have a rare and hard to diagnose disease called Sanfilippo syndrome. (Bulletin photo by Judy Spooner)

Boys' rare disease bonds Cottage Grove, St. Paul Park families

Email

Jennifer Fair said she tells her 10-year-old son that she loves him and that he is “my perfect boy.”

She sees Alex, not the disease that will eventually take his life.

Most nights, Alex has trouble staying asleep. When he’s having a bad night, Erik Fair does what most fathers will never have to do. He sleeps next to his son’s bed and when Alex tries to get up, Eric puts Alex’s leg back into the bed and goes back to sleep.

Are you a newspaper subscriber but you don't have a Digital Access account yet? https://secure.forumcomm.com/?publisher_ID=40&event=subscriber/lookup.

You will need your subscription account number and phone number. Not sure if you have an account? Email us at subscriberservices@forumcomm.com and we can help you.

Advertisement
jspoo
Judy Spooner is the longest-serving staff writer at the South Washington County Bulletin. Spooner, who covers education and features in addition to writing a weekly column, has been with the newspaper for over 30 years.
(651) 459-7600
Advertisement
Advertisement
randomness