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Alex Fair (left) and Jack Kell, pictured playing on the mini trampoline in the Fair family room, have a rare and hard to diagnose disease called Sanfilippo syndrome. (Bulletin photo by Judy Spooner)

Boys' rare disease bonds Cottage Grove, St. Paul Park families

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Jennifer Fair said she tells her 10-year-old son that she loves him and that he is “my perfect boy.”

She sees Alex, not the disease that will eventually take his life.


Most nights, Alex has trouble staying asleep. When he’s having a bad night, Erik Fair does what most fathers will never have to do. He sleeps next to his son’s bed and when Alex tries to get up, Eric puts Alex’s leg back into the bed and goes back to sleep.

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Judy Spooner
Judy Spooner is the longest-serving staff writer at the South Washington County Bulletin. Spooner, who covers education and features in addition to writing a weekly column, has been with the newspaper for over 30 years.
(651) 459-7600